Having a chronic illness is expensive. I do have insurance, but they only cover so much. Today ButYouDontLookSick.com posted a link to GiveForward.com, which is similar to Kickstarter.com, but for medical bills.
I've seen other people that blog about their medical issues with donation buttons on the side of their blogs and I've debated doing that as well. My biggest issue is that I was raised not to whine about my problems to strangers (or even most family) or to ask for money. I have a hard enough time letting my friends pay for my lunch, much less asking strangers to donate for my medical needs.
On the other hand, the list of surgeries/procedures/tests/devices I need is getting longer and the things I've been pushing off are getting to the point where I can't push them off much longer.
Right now I need:
Ligament repair (right knee), new braces, MRI to confirm CIPD or Chiari Malformation then surgery to fix it if possible, two rotator cuff repairs, two ankle fusions or ligament reconstruction, ligament repair in my right thumb, gum reconstruction, spinal fusion or spinal cord stimulator, surgical mesh replacement & they need to clean out the arthritis/cartilage tears in my hip & maybe tighten the joint.
I'm also having major issues with collar bones, ribs & my sternum dislocating. Yes, this can happen and it can be quite painful. I don't know what they can do to fix this, maybe fusion?
The hardest one for me to face is I may need to buy a wheelchair much sooner than later. I have to have an ultra light model due to the Ehlers Danlos.
So, is it tacky for someone with an incurable chronic illness to set up a donation site for themselves? Would you do this?
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